International Journal For Multidisciplinary Research

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Correlation of X-Linked Dystonia-Parkinsonism Severity to the Quality of Life of Primary Caregivers in an Outpatient Clinic in the Philippines

Author(s) Jose Manuel Geotina, Cid Czarina Diesta, Jed Noel Ong, Paulo Lacdao Cataniag
Country Philippines
Abstract X-linked dystonia-parkinsonism (XDP) is an inherited, progressive movement disorder characterized by a combination of dystonia (involuntary muscle contractions that cause repetitive movements or abnormal postures) and parkinsonism (symptoms similar to Parkinson’s disease, such as tremors, rigidity, and bradykinesia). Patients in advanced stages of XDP become dependent upon family members and require permanent help
from caregivers. This leads to a decrease in the quality of life of caregivers.

The primary objective of this study was to investigate the impact of X-linked dystonia Parkinsonism (XDP) severity of patients being seen at an outpatient clinic in the Philippines on the quality of life (QoL) of patients’
respective primary caregivers.

The study demonstrated a strong negative correlation between disease severity and caregiver well-being. The significant associations with lifestyle factors such as diet and physical activity further emphasize the need for comprehensive support systems addressing both medical and psychosocial needs.
Keywords XDP, Quality of Life, Caregivers
Field Medical / Pharmacy
Published In Volume 7, Issue 1, January-February 2025
Published On 2025-02-20
Cite This Correlation of X-Linked Dystonia-Parkinsonism Severity to the Quality of Life of Primary Caregivers in an Outpatient Clinic in the Philippines - Jose Manuel Geotina, Cid Czarina Diesta, Jed Noel Ong, Paulo Lacdao Cataniag - IJFMR Volume 7, Issue 1, January-February 2025. DOI 10.36948/ijfmr.2025.v07i01.37320
DOI https://doi.org/10.36948/ijfmr.2025.v07i01.37320
Short DOI https://doi.org/g85ssx
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